VR Foundation, a philanthropic organisation that funds and fast-tracks medical research for vitiligo globally, has been working on new resources for vitiligo. Over the next few months, it will launch two new resources for use by: 1) dermatologists and support groups, and 2) vitiligo patients, their families and their friends. The resources will support both groups…
Author: admin
Leanna’s record-breaking challenge for vitiligo
18-year old Leanna Shuttleworth is about to embark on a record-breaking challenge; one with hopes to raise over £40,000 for the Vitiligo Society. The challenge, that kick starts next month, involves climbing two of the world’s highest mountains – Mount Everest and Mount Lhotse – back to back, in just 24 hours. If successful, Leanna…
Torchbearer supports Vit Awareness Day
We came across an article we really wanted to share today. Dave Allemby, a member of Wombwell Sporting and Athletics Club is thrilled to hear he will be an Olympic flame torchbearer. He will carry the flame through Lundwood, South Yorkshire. The date he will carry the flame? Monday, June 25. Vitiligo Awareness Day. Coincidentally, Dave has suffered…
New techniques bring hope for vitiligo treatment
A US dermatologist has released a fresh insight into the various surgical methods that could lead to more effective treatment of vitiligo*. The new information brings new hope to sufferers and was presented at American Academy of Dermatology’s 70th Annual meeting. New surgical techniques include skin grafting – where normal skin is used as donor…
500,000 signatures needed for World Vitiligo Day
The VR Foundation is trying to muster up 500,000 signatures for the UN to recognise and designate June 25 as World Vitiligo Day. Please sign petition now to show your support. Find out more about World Vitiligo Day now.
Vitiligo facebook campaign launched
A new campaign has been launched to increase the awareness of vitiligo across social media. Vitiligo Project’s ‘Vitiligo Awareness’ campaign has been launched on Facebook with the aim to connect with its 845 million monthly active users. It’s only just up and running – so I’m mustering up some support! If it’s a success hopefully some…
VITILIEGO: The best vitiligo documentary we’ve seen
Darius describes it as ground hog day – and for most people living with vitiligo – this is exactly what it’s like. This documentary is conveniently called VitiLIEgo. It’s a snippet and good example of what it’s like to live with the disorder. Although the documentary is moving, I can honestly say it’s the best one I’ve seen…
Light therapy – my results
I started light therapy in mid January 2011. The treatment ended in April but although it only lasted three months, I’ve seen brilliant results in a couple of my patches. Now the summer’s pretty much over – here’s a follow-up of my progress. I won’t dwell on the actual treatment (I’ve documented it already if you’re…
Protopic and vitiligo
Many of us have been prescribed protopic and those of us that haven’t, wonder if it’s something they should use – but what is protopic and why is it good for vitiligo and what aren’t you told by the doctor? I’ve been prescribed protopic three times now, by three different people – I guess each of them…
Sharing my story
Biopharmaceutical company, Clinuvel, approached me a couple of weeks ago with a very exciting proposal, asking if I’d like to share my story. My response…? Of course! A couple of years ago I would have said no. It took me a long time to get used to vitiligo and I would have felt very much embarrassed. But,…